海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

妊娠・出産

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~チームを作る~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 26:33-27:29 So assemble your team. So the next thing is that's important to do is sort of come up with a a multidisciplinary team that can be assembled by the captain of the sh…

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~大動脈解離以外のリスク~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 24:14-26:32 So risks related to pregnancy, here's some of the things that the maternal fetal medicine specialists would talk about this, you know, that we need to consider, so …

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~予防的大動脈置換手術~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 22:45-24:12 And then I'm going to talk a little bit about prophylactic aortic replacement before pregnancy. では、妊娠前に予防目的で行う大動脈置換手術についてお話します。 So th…

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~予防的大動脈置換手術~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 22:45-24:12 And then I'm going to talk a little bit about prophylactic aortic replacement before pregnancy. では、妊娠前に予防目的で行う大動脈置換手術についてお話します。 So th…

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~妊娠前の準備~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 20:18-22:44 So plan ahead. This is preconception counseling so before you get pregnant, it's important to have conversations with your doctors. ではまず、妊娠前の準備についてお…

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~検討すべき項目~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 19:03-20:16 So again we're going to move on now and just talk more about. Yes, there's this thing that's really scary in the aortic dissection but there's a lot of things we ca…

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~危険因子と保護因子~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 17:56-19:02 So, how do we identify women who are at highest risk for adverse or bad outcomes during or after pregnancy? では、妊娠中あるいは妊娠後に高リスクで有害転帰となる女性…

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~妊娠中の大動脈解離の症状~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 17:20-17:51 So what are the symptoms of aortic dissection? It can be chest pain, back pain, trouble breathing, stroke like symptoms, passing out or focal neurological sign and …

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~妊娠中の大動脈解離~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 15:17-17:17So we're going to just talk about this rare thing a little bit more. So we do know that this is a rare event. Look at all women, not just the women with Marfan or Lo…

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~大動脈解離の発症時期とリスク因子~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 12:47-15:14 Okay, so just to talk about the timing and risk factors for aortic dissection in pregnancy, we know from previous studies just looking at large cohorts that we thin…

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~心血管疾患のリスク~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 10:12-12:41 So talking about Marfan, Loeys-Dietz syndromes, these are both connective tissue disorders that affect connective tissues in the body including the ligaments, bones…

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~「親」になる方法~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 8:18-11:10 So first, if you're thinking about getting pregnant, you know, if a person like them, the most common question I get from a woman, if she has Marfan or Loeys-Dietz, …

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~はじめに~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 7:30-10:11 So we're going to talk through just things to consider if you do want to have a pregnancy and tonight I'm focusing on Marfan, Loeys-Dietz. 今回のオンラインセミナーで…

大動脈を守るために ~まとめ~

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 41:34-42:15 So take care of your aorta by doing the following. Get a routine evaluation by imaging, know and remember your aortic size and have that followed, take medic…

大動脈を守るために ~妊娠・出産について~

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 30:50-33:25Pregnancy is a risk factor for aortic dissection in women who have Marfan and other genetic aortic conditions. Most of the information we have about that risk…

妊娠・出産について

妊娠前に考えるべきこと 妊娠前にすべきこと 子供に遺伝する確率 妊娠中に病気にかかるリスク 流産の可能性 妊娠中にすべきこと 妊娠中のワーファリン服用について 妊娠中の β ブロッカー服用について 妊娠中の骨・関節の問題 普通分娩と帝王切開のどちらが…

出産について

What are the considerations for pregnancy in Marfan syndrome? I get asked that question a lot when people come into clinic, like, what's the percentage of people that do prenatal diagnosis or maybe terminating a pregnancy with Marfan syndr…