海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

マルファン症候群、ロイス・ディーツ症候群、血管型エーラス・ダンロス症候群小児の心疾患について ~βブロッカーとARB~

Children's Heart Issues in Marfan, Loeys Dietz, and vEDS - Virtual Symposium Series (4/9/19) 25:07-26:16 All right, what about medical therapy? So if there are two basic classes of medications that we use. 薬物療法で用いられる薬は基本的に2…

ACE阻害薬およびARBとCOVID-19について

The Marfan Foundation and Loeys-Dietz Syndrome Foundation Join Forces 34:03-35:58 Q:Now we're gonna jump over to Hal and Bart for the medical question.I'm really into you COVID-19. Vincent says it looks like COVID-19 is also vascular virus…

妊娠中はβブロッカーを飲んだほうがいいのか?

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 56:54-58:28 Q:What about a woman with Marfan, who doesn't, who doesn't take beta blockers and should she start taking them during pregnancy or any other medication to slow the …

マルファン症候群女性に推奨される経口避妊薬はあるか?

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome Q:Do you recommend a specific oral birth control medication or brand for women with Marfan? マルファン症候群の女性向けにおすすめの経口避妊薬はありますか? A:So in terms of oral…

マルファン症候群およびロイス・ディーツ症候群における妊娠・出産 ~大動脈の保護~

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 29:55-31:30 So talking about protection of the aorta and then we're going to talk about how we watch the baby as well. このスライドでは、大動脈の保護と母体内の胎児の経過観察に…

イブプロフェンはCOVID-19を悪化させるか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:06:37-1:07:34 Ibuprofen, there's been some experimental work to again show that, that increases the production of the receptor for this virus. That, it's interesting. It's, it's a ver…

COVID-19とARBについて

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:00:44-1:06:36 So the next set of questions kind of deals with different medications that are usually used for patients with Marfan and these other related connective tissue disorders,…

COVID-19の治療に結合組織疾患の患者が使うべきではない薬はあるか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 52:14-57:28 "Are there any medications given to treat this virus that patients with connective tissue disorders should not be given?" So we talked about a few of those. Are there anythi…

COVID-19とマルファン関連疾患 ~抗菌薬について~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 34:35-39:50 Okay, can we have a next slide? Hal, do you want to take this one with the antibiotic clip? 次のスライドは抗菌剤についてです。Dietz先生お願いします。 Sure, um so COVID-19 is…

COVID-19とマルファン関連疾患 ~市販薬について~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 32:09-34:34 Now in terms of the medications to take, I think over-the-counter medications are fairly safe except for the decongestants that have sudafed or pseudoephedrine-related compo…

オピオイドと抗うつ剤・抗不安薬の併用は安全か?

Managing Pain 50:00-50:53 Q:What about if you're also taking like an antidepressant or antianxiety medication at the same time, like something to worry about? 抗うつ剤や抗不安薬をオピオイドと一緒に飲んでも大丈夫でしょうか? A:In general, n…

痛みの管理 ~使われる薬~

Managing Pain 20:17-21:36 So when thinking about medications, there's lots of different ways to target pain and again oftentimes individuals with chronic pain are experiencing pain because of different signaling pathways in their body and …

痛みの管理 ~マルファン症候群とオピオイド~

Managing Pain 17:36-18:59 And again, there's very limited research on kind of opioid use in Marfan syndrome. So this was some other data that we've recently published and this shows that of the patients who, at the time of the survey, said…

フルオロキノロン(抗菌薬)の副作用について教えて下さい

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 49:43-52:35 Q:How about fluoroquinolones? What's somebody asked is that fluoroquinolones and the aorta. I know that's been in the news lately. 最近、フルオロキノロンと大…

β遮断薬、ARBを長期間服用しても問題ないか?

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 49:44-50:43 Q:So here's a question, medication question. So people with Marfan are on either beta blocker or losartan. On this particular person said he ha…

加齢とマルファン関連疾患 ~薬物・疾患相互作用~

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 34:53-35:55 I am showing this slide simply because all of us are going to be having this challenge of, you know, several or even many medications and then …

ロイス・ディーツ症候群について ~βブロッカーとARBの非臨床試験~

Loeys Dietz Syndrome: Virtual Medical Symposium Series (11/8/18) 6:58-11:24 So that led us to the concept that a special class of blood-pressure medications called angiotensin receptor blockers, with one prominent example being losartan, m…

大動脈を守るために ~まとめ~

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 41:34-42:15 So take care of your aorta by doing the following. Get a routine evaluation by imaging, know and remember your aortic size and have that followed, take medic…

大動脈を守るために ~薬と運動~

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 29:40-30:48 It's important to recognize that being on a medication for the aorta such as a beta blocker, which slows the heart rate and lessens, lessens force of contrac…

大動脈を守るために ~推奨される薬物療法~

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 23:41-25:04 And unfortunately, it's so fortunately, it is helpful, but it's, it has not been yet proven in the largest trials to be better than beta blocker in single tr…

大動脈を守るために ~マウスモデルでのロサルタンの効果~

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 22:30-23:40 So in a Marfan mouse, losartan, by blocking TGF-β, improved the aorta. So this wild-type means a normal mouse and between these arrowheads is a normal aortic…

大動脈を守るために ~βブロッカーについて~

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 18:20-20:28 One of the basic concepts in medical management, in other words, non-surgical therapy of aortic aneurysm disease, we'll talk about medications, learning abou…