海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

COVID-19(新型コロナウイルス感染症)

新型コロナウイルス感染症と大動脈疾患についての最新研究 ~トピックの紹介~

Covid and Aortic Conditions: The Latest Research 6:32-8:12 So thanks everybody for joining us. I see that we have over 200 people here today and so I want to just begin by going over what we're going to try to cover today. 皆様、セミナーに…

新型コロナウイルスワクチンとマルファン関連疾患について

はじめに アレルギーの既往のある患者はどうするか? ARB、βブロッカー、ACE阻害薬と新型コロナウイルスワクチン 新型コロナウイルス拡散に対する注意喚起 はじめに The Marfan Foundation の専門家委員会(PAB)は、接種を認められたすべての集団が、 新型…

遺伝性大動脈疾患とCOVID-19

Genetic Aortic Conditions and COVID-19 from The GenTAC Alliance Hi, my name is Kim Eagle. I'm the chair of the GenTAC alliance powered by The Marfan Foundation. 皆さん、こんにちは、私はKim Eagleと申します。The Marfan Foundationのパートナー…

ACE阻害薬およびARBとCOVID-19について

The Marfan Foundation and Loeys-Dietz Syndrome Foundation Join Forces 34:03-35:58 Q:Now we're gonna jump over to Hal and Bart for the medical question.I'm really into you COVID-19. Vincent says it looks like COVID-19 is also vascular virus…

マルファン関連疾患があり、COVID-19で病院にかかる場合、ハイリスクであることをどのように伝えればいいか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:22:40-1:24:27 Well, actually the first question, we've already hit on some of those things that we, you know, we would recommend our community members tell their doctors about their d…

医療従事者がマルファン関連疾患の場合、どうすれば感染を防げるか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:17:37-1:22:22 "If one has one of the these disorders and as a health care provider, how can we protect their own safety?" 「マルファン関連疾患の医療従事者が感染から身を守るにはどうす…

肺を強くする方法はあるか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:15:08-1:16:30 "Is there anything that we can do now to strengthen our lungs to prevent a worse outcome with this virus and in general just for us and our children?" 「COVID-19の重症化…

人工呼吸器を使用することで、気胸になったり肺が弱くなるリスクが上昇するか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:11:34-1:12:27 The third question is "Will the use of a ventilator increased the risks of lung collapse and fragile lungs?" 「人工呼吸器を使用することで、気胸になったり肺が弱くなるリス…

COPDなどの拘束性肺疾患がある場合、COVID-19に感染するとどのような影響があるか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:11:02-1:11:33 So the second question is "How will the lungs be affected if you already had COPD or another restrictive lung disease?" 「COPDなどの拘束性肺疾患がある場合、COVID-19に感…

通院再開の時期と方法について

The Marfan Foundationは、専門家委員会(PAB)の協力の下、COVID-19に関するニュースを継続的に監視し、マルファンコミュニティに最新の情報を提供したいと考えています。この度メディケア&メディケイドサービスセンター(CMS)から対面診療の再開に関する…

肺の基礎疾患があると、COVID-19により悪化しやすいか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:07:51-1:11:07 So these are questions that deal with lung issues and this virus, so Enid? このスライドの質問は肺に関するものですので、Enid先生お願いします。 Yeah, these we covered some…

イブプロフェンはCOVID-19を悪化させるか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:06:37-1:07:34 Ibuprofen, there's been some experimental work to again show that, that increases the production of the receptor for this virus. That, it's interesting. It's, it's a ver…

COVID-19とARBについて

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:00:44-1:06:36 So the next set of questions kind of deals with different medications that are usually used for patients with Marfan and these other related connective tissue disorders,…

COVID-19の症状があっても、ステロイド吸入器を使用できるか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 58:54-1:00:40 And the last issue, "if you use an inhaler that contains a steroid can you still use it if you have COVID-19 symptoms?" では、このスライドの最後の「COVID-19の症状があって…

Marfan患者がCOVID-19に感染した場合、CPAPの利用は可能か?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 57:25-58:54 I'll step in with the CPAP question. The general consensus among the pulmonologist and intensivist about CPAP with COVID is that it's probably not an ideal choice and that i…

COVID-19の治療に結合組織疾患の患者が使うべきではない薬はあるか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 52:14-57:28 "Are there any medications given to treat this virus that patients with connective tissue disorders should not be given?" So we talked about a few of those. Are there anythi…

マルファン関連疾患では、人工呼吸器の圧力設定はどのくらいがいいのか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 48:38-52:07 "If we need to be in the hospital or on a ventilator, do we need higher or lower ventilator pressures?" 「病院で人工呼吸器を使うことになったら、人工呼吸器の圧力は高いほうが…

ロイス・ディーツ症候群では、COVID-19の治療に通常とは異なる治療法が必要か?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 47:54-48:37 "Does someone with Loeys-Dietz syndrome or require any different treatment?" 「ロイス・ディーツ症候群では、通常とは異なる治療法が必要となるか?」という質問に回答します。 Now…

Marfan患者はCOVID-19を乗り越えられるのか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 45:11-47:53 So we'll go over a few of them one of the first one is "Can an individual with Marfan receive treatment and survive COVID-19?" So, Hal, do you want to take that? 最初の質問…

COVID-19とマルファン関連疾患 ~対症療法について~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 39:53-45:07 Great, thanks. Let's have the next slide, so Enid you want to talk about some of these pain relievers and other ways to relieve nasal congestion. 次のスライドは痛み止めの薬…

COVID-19とマルファン関連疾患 ~抗菌薬について~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 34:35-39:50 Okay, can we have a next slide? Hal, do you want to take this one with the antibiotic clip? 次のスライドは抗菌剤についてです。Dietz先生お願いします。 Sure, um so COVID-19 is…

COVID-19とマルファン関連疾患 ~市販薬について~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 32:09-34:34 Now in terms of the medications to take, I think over-the-counter medications are fairly safe except for the decongestants that have sudafed or pseudoephedrine-related compo…

COVID-19とマルファン関連疾患 ~気を付けるべき症状~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 29:51-33:04 Can we have the next slide? So the next couple of slides is just go over some important points on how to treat yourself if you do get some kind of flu or cold or virus such …

COVID-19 ハイリスク患者と人工呼吸器

肺疾患および心疾患の基礎疾患のある患者はハイリスクか? ハイリスク肺疾患 ハイリスク循環器疾患 その他のハイリスク疾患 人工呼吸器の使用 肺疾患および心疾患の基礎疾患のある患者はハイリスクか? マルファン症候群、血管型エーラス・ダンロス症候群(V…

COVID-19とマルファン関連疾患 ~ハイリスクとは考えられない循環器疾患~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 26:33-29:48 Hal, do you want to take the other cardiovascular items listed here on the list? Dietz先生、このリストにある心血管疾患について説明をお願いします。 Sure, one thing I would me…

COVID-19とマルファン関連疾患 ~ハイリスクな肺疾患~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 21:49-26:31 So you know, many patients even though we have all of these subgroups of whom is at higher risk are asking about certain features that they have, so maybe we can just go thr…

COVID-19とマルファン関連疾患 ~気になる疾患がある場合はどうするか~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 20:43-21:48 We have the next slide. So as you said, Hal, you did make the point that if a patient only cardiovascular feature is an isolated aortic root enlargement or aneurysm and real…

COVID-19とマルファン関連疾患 ~肺に関する注意事項~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 19:21-20:42 I share one other point before we move on. 私の方から一点補足したいと思います。 So as Enid was mentioning, people with many of these diagnoses can be at risk for a pneumotho…

COVID-19とマルファン関連疾患 ~呼吸器・循環器以外の疾患~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 13:41-17:56 So Dr. Dietz, there's a few of the other disorders that may also have a higher risk for severe complications that are listed on this slide, you know, that mainly deal with L…

COVID-19とマルファン関連疾患 ~循環器~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 9:30-13:25 And so this slide outlines those about cardiovascular diagnosis that may lead to somebody having a more severe reaction to the virus, so Dr. Dietz, can you go over some of th…