Family Planning and Pregnancy: US and Europe Perspectives 38:42-39:55 So there is an increased risk for aortic dissection in pregnancy, which is the result of both hemodynamic, hormonal but also from thromboembolic changes and actually pre…

Family Planning and Pregnancy: US and Europe Perspectives 37:12-38:41 I will continue this webinar with the next topic, "the follow-up during pregnancy," so in the coming minutes I will discuss when we should see our patients and who actua…

Family Planning and Pregnancy: US and Europe Perspectives 34:58-36:47 And then to end this presentation I just want to mention that every woman wanting to become pregnant should have a cardiac ultrasound done prior to pregnancy to look at …

Family Planning and Pregnancy: US and Europe Perspectives 34:13-34:57 So very briefly some prospective data and I'm going to skip this slide because I know that Martijn is going to address this one but I just want to mention with you that …

Family Planning and Pregnancy: US and Europe Perspectives 32:58-34:12 So even after aortic root replacement because if you recommend replacement before pregnancy you should be aware that you are still not in an absolutely safe zone, so the…

Family Planning and Pregnancy: US and Europe Perspectives 29:49-32:57 So how can we reduce the risk? As I mentioned knowing the diagnosis is really, really paramount. Pre-pregnancy counseling as Melissa has nicely explained. Follow-up duri…

Family Planning and Pregnancy: US and Europe Perspectives 28:52-29:49 So how can this risk be estimated? We use risk estimations and this is the most widely used risk estimation. The, WHO risk estimation where you have categories going fro…

Family Planning and Pregnancy: US and Europe Perspectives 26:21-28:53 So risk factors in the setting of, of, of Marfan disease and related heritable thoracic aortic diseases diagnosis of the aortopathy is really crucial. Most women in seri…

Family Planning and Pregnancy: US and Europe Perspectives 22:52-26:21 I will be addressing firstly what is the risk that we are talking about, how can we estimate the risk, how can we reduce the risk and I'll be addressing prophylactic sur…

Family Planning and Pregnancy: US and Europe Perspectives 21:15-21:49 So the summary from this first part is really just saying get information about your body and the risks and imaging and consultation prior to even thinking about pregnan…

Family Planning and Pregnancy: US and Europe Perspectives 18:05-21:13 The procedure of IVF is complex, so just to sort of walk you through what this entails. First, the first the, the mother needs to have hormonal medications to induce ovu…

2021年11月30日 2020年5月、コロナ禍で世界中が外出制限の中、ニューヨーク州クイーンズに住むユリアと夫は、幸せを噛みしめながら初出産に向けた準備を進めていました。ユリアは学生で、母子ともに経過はすこぶる良好に見えました。 妊娠38週目。事態は一変…

Family Planning and Pregnancy: US and Europe Perspectives 16:42-18:03 So talking just about pre-implantation genetic ??? testing on the embryo. It's usually going to be made in a dish and then it's day five or six, you can take one cell fr…

Family Planning and Pregnancy: US and Europe Perspectives 16:01-16:39 So the decision to become a parent again is really a personal decision and then how you achieve this goal is very individualized based on your medical risks, your morals…

Family Planning and Pregnancy: US and Europe Perspectives 14:20-15:59 So changing gears and sort of talking about genetics and heritability. A bunch of people asked prior to the president the, this presentation, "what is the risk of me pas…

Family Planning and Pregnancy: US and Europe Perspectives 10:46-14:17 In terms of meditation, the first thing I want to say is it's really important to not just stop or start a medication you should always be doing this with one of your do…

Family Planning and Pregnancy: US and Europe Perspectives 9:56-10:43 Okay, so other people are going to be talking about risks in relation to pregnancy more of the cardiac side of things. From an obstetric standpoint there are studies that…

Family Planning and Pregnancy: US and Europe Perspectives 7:43-9:54 So I'm talking about preconception counseling. We're going to talk about the one baseline knowledge about your body, so sort of getting imaging before pregnancy, we're goi…

Aortic Disease Research (9/19/22) 51:42-53:41 Q: Karen, who we know, she wants to know is Valsartan as effective as Losartan in diminishing growth of the aorta. Eileen: 大動脈の拡張を抑えるという点では、バルサルタンでもロサルタンと同じくら…

Aortic Disease Research (9/19/22) 38:47-42:50 So a couple of other updates that I think are, are interesting and, and timely. The IRAD group that I have the pleasure of sharing over the last 25 years published about two weeks ago a paper i…

血管型エーラス・ダンロス症候群の別名 血管型エーラス・ダンロス症候群の患者数 血管型エーラス・ダンロス症候群の臨床的特徴 血管型エーラス・ダンロス症候群の原因 血管型エーラス・ダンロス症候群の診断 血管型エーラス・ダンロス症候群の寿命 血管型エ…

Aortic Disease Research (9/19/22) 34:55-38:43 So bicuspid aortic valve is a very common inherent disorder of the aortic valve and a certain percentage of patients 10 to 35 percent also have an abnormal, abnormal aorta. I think it's estimat…

Aortic Disease Research (9/19/22) 32:19-34:52 So vascular Ehlers-Danlos represents a really important effort of the foundation and of scientists around the world and I would like to suggest that in some ways with vascular EDS we're just be…

Aortic Disease Research (9/19/22) 28:04-32:15 So Loeys-Dietz syndrome, there were a number of important articles or publications or presentations at the meeting. Two that I thought were especially important. ロイス・ディーツ症候群について…

Aortic Disease Research (9/19/22) 23:25-28:00 The Marfan syndrome presentations were numerous and, and almost too many to cite. I pulled just a couple. マルファン症候群については、多くの発表がありました。その中からいくつかご紹介します。 Th…

Aortic Disease Research (9/19/22) 20:42-23:20 So, this was a very interesting analysis. Sherene Shalhub and others led a large group of patients to try to understand from patients and families, what, what are the research priorities that y…

Aortic Disease Research (9/19/22) 16:39-20:39 So where are we with biomarkers? So biomarkers are proteins that are circulating in the blood that we would like to be able to use to either diagnose or prognosticate certain problems. バイオマ…

Aortic Disease Research (9/19/22) 14:15-16:33 This was a study, which actually was done by one of our imagers at the University of Michigan, Nick Burris and one of the things that we've been trying to understand is if a person has an aorto…

Aortic Disease Research (9/19/22) 10:20-14:10 So there were a number of studies presented in Paris which looked at a quality of life in children who have hereditary thoracic aortic disease and as you might expect in general children who ha…

The Marfan Foundation 主催の Science in Paris (8/29-9/1, 2022) で発表された研究のアブストラクトが掲載されています。 https://marfan.org/wp-content/uploads/2021/07/International-Symposium-Booklet-2022_web.pdf