Entries from 2021-01-01 to 1 year
Personal Perspectives Panel: Physical Activity & Exercise 28:09-30:01 Thanks so much. Definitely have some questions for you. I'm gonna toss it over to Samantha now so if you tell us a little bit about your story and what, you know, physic…
Personal Perspectives Panel: Physical Activity & Exercise 25:52-28:08 So now what I'd like to do is invite our other panelists back, Alan, Morgan and Samantha. And I'd like to do is have you each talk a little bit about, just take a couple…
Personal Perspectives Panel: Physical Activity & Exercise 23:37-25:40 So what about recreational exercise? We talked about the guidelines for competitive. 勝ち負けを競うスポーツに関するガイドラインについては紹介しました。では、娯楽目的で行…
Personal Perspectives Panel: Physical Activity & Exercise 22:32-23:35 Exercise provides many important benefits. 運動には多くのメリットがあります。 In a survey of 314 survivors of aortic dissection those who exercise regularly experience l…
Personal Perspectives Panel: Physical Activity & Exercise 21:41-22:30 I was alluding to some recent research that has been published. This is from 2017 by Gibson's team. Recent mouse studies has suggested that mild to moderate dynamic exer…
Personal Perspectives Panel: Physical Activity & Exercise 20:52-21:39 It's important to emphasize also that medications can have a significant impact on physical activity and a lot of times in different ways. 運動に対しては薬も大きな影響を…
Personal Perspectives Panel: Physical Activity & Exercise 18:49-20:51 So looking at the best data that we have available what do the guidelines recommend regarding competitive sports in people with Marfan syndrome and related disorders? Ma…
Personal Perspectives Panel: Physical Activity & Exercise 16:31-18:40 Thankfully dying suddenly when you're an athlete is very, very rare so it's a rare phenomenon in general and of that rare complication only two percent of death in athle…
Personal Perspectives Panel: Physical Activity & Exercise 14:45-16:30 What about if I exercise over time? Does it have any impact on my aorta? Next slide. では、長期間にわたって運動を続けた場合はどうなるのでしょうか？大動脈への影響はあるの…
Personal Perspectives Panel: Physical Activity & Exercise 12:45-14:44 I'm going to speak a little bit about a concern that many people have. This is "If I exercise, will that cause harm to my aorta? What do we know about that?" Well, next …
Personal Perspectives Panel: Physical Activity & Exercise 10:55-12:39 In general systolic blood pressure may increase by eight to twelve millimeters of mercury per MET of aerobic activity. Since blood pressure directly impacts aortic wall …
Personal Perspectives Panel: Physical Activity & Exercise 8:38-9:59 Although we often talk about exercise as a general category it's really important to emphasize that not all types of exercise are the same. Certain activities lead to more…
Personal Perspectives Panel: Physical Activity & Exercise 7:33-8:21 And then the aorta is different in everyone. On the slide to your left, next slide, will have an arrow pointing to the aorta in someone that looks normal so that's a norma…
Personal Perspectives Panel: Physical Activity & Exercise 6:45-7:30 In some people it's not just the blood pressure response or the aorta that we think about but of course risks to other other parts of the body that can be involved. 運動に…
Personal Perspectives Panel: Physical Activity & Exercise 5:30-6:43 People ask about a heart rate during exercise. That's really kind of tricky because everybody's heart rate starts at a different level especially if you're on medication y…
Personal Perspectives Panel: Physical Activity & Exercise 3:46-5:29 So what do we know about exercise? How much is safe? It really depends, what's the condition, what's the condition of the aorta, what's the age of the individual, what typ…
Personal Perspectives Panel: Physical Activity & Exercise 2:20-3:41 Welcome and it's a privilege to be here with everybody today as Eileen said Mary and I are gonna tag team and really just give some basic information and kind of a broad o…
Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 1:02:16-1:04:22 Q:This is another one specifically from a Marfan patient but I'm going to guess it's got cross, cross applicability again, so he says can severe constipat…
Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 58:43-1:01:09 Q:Could you speak to the effects of connect, connective tissue disorders on the pelvic floor? This person specifically asked about Marfan but maybe broadly …
Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 55:58-58:39 Q:Do you have any concern about long-term use of senna? Do you think magne, Mag O7 could be an effective alternative dosing? 大腸刺激性下剤の長期間服用には問…
Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 54:23-55:49 Q:Are there any new treatments for, I'm just gonna go ahead and use the abbreviation EoE so I don't butcher the, the words here, except diet, steroids, and PP…
Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 51:47-54:19 Q:What are the main nutritional concerns with a consistently low BMI for LDS children? My 15-year-old has struggled with weight gain and his type Loeys-Dietz …
Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 49:50-51:33 Q:Next question my son with Loeys-Dietz gets sick or vomits at least a couple times a week. Should he be seeing a gastroenterologist or is this common? LDSの…
Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 48:13-49:35 Q:What are the main things to look out for and should test to look for this be carried out on everyone with Loeys-Dietz or just those with symptoms? We have a…
Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 46:18-48:01 Q:Next question is taking Miralax daily twice a day okay and does it cause malnutrition and/or low potassium? ミララックスを毎日2回服用しても問題ないでしょう…
42:31-46:07 Q:It says is there a specific allergy common in Loeys-Dietz syndrome? My partner is dairy and lactose intolerant so should we consider an allergy test for our old 14-year old, 14 month- old son, LDS SMAD3? LDSで多くみられるアレ…
Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 38:55-40:30 So to summarize your body mass index or if you're less than two your weight for length should be plotted at every visit and if it is low dropping or a surgery…
Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 37:51-38:54 Symptoms of inflammatory bowel disease include poor growth, diarrhea, blood in the stool and blood tests that show hidden inflammation, anemia or low red bloo…
Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 35:53-37:48 What I'm going to be spending some more time I'm talking about is another form of intestinal inflammation called inflammatory bowel disease or IBD. 次に炎症性…
Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 34:46-38:54 Lastly I'm going to talk about intestinal inflammation in Loeys-Dietz syndrome. 最後はLDSにおける炎症性腸疾患についてお話します。 The first kind of intestinal…
